August 2004


 

Name Of Column Author Title Article Type
Musings From The President Murray Allan Herb Simon-Casey Cooper News & Events
VoicePoints Dan H. Kelly, Ph.D. Master Clinician                                       Education-Med
WebWhispers' Comments WW Attendees Report Impressions From IAL 2004 Experiences
Bits, Buts, & Bytes Dutch Computer Tips Experiences
Lary Laffers    Dorothy Lennox Unusual Stoma Cover Request Experiences
Welcome New Members Listing Welcome News & Events

 

 

                Murray's Mumbles ... Musings from the President
 
 Casey-Cooper Award Presented to Herb Simon of Silver Spring, MD
 

     It is a great pleasure and honor to report that Herb Simon of Silver Spring, MD is the 2004 winner of the prestigious Casey-Cooper Laryngectomee of the Year Award.  Herb was presented with an engraved pewter bowl as an acknowledgment from WebWhispers of his stellar efforts in the care and support of his fellow laryngectomees since 1995.  This award was presented at the WebWhispers banquet held at the July IAL convention in Anaheim, CA.

     Presented with a Certificate of Honor was our Vice President of Member Services, Libby Fitzgerald, who was recognized by her fellow WebWhispers members for her outstanding services to all laryngectomees.

     The second Certificate of Honor, was presented to Dawn Douglas, the "significant other" of the honoree, Mark Crowe, who sadly passed away due to a motor vehicle accident in June.  Mark will always be remembered for sharing, caring, and his superb good humor.  Mark's passing was a tragic loss to all that knew him and especially his fellow laryngectomees with whom he was very close.

     The Golden Sage Award was presented to Dorothy Lennox of Luminaud.  Dorothy's knowledge of matters from dealing with insurance to use of equipment for laryngectomees is truly laudable.

     Our Audio/Visual expert, Gary Miner Sr. was presented with the Audio Visual Expert Award.  Gary's expertise in these matters is incredible.  Not only does he work day and night for the IAL but he is always on call to lend his audio and visual skills available to WebWhispers.  He is indeed a "sound" choice for this Award.

     Our Long Distance Lary Award was presented jointly to Jose and Regina Cruz who traveled all the way from Sao Paulo, Brasil (Brasil) just to be with us.  I would also like to recognize Marianne Peereboom of the Netherlands and Lorrance Lancaster from Australia who have previously won Awards for this category.

     For those who were at the WW banquet I would like to mention my difficulties during the presentations.  I am suffering from spinal stenosis in which the spinal bones are pressing against the nerves which control my left arm and right leg, which are both giving me problems.  I am taking copious quantities of painkillers to manage.  The good news is that I'll be receiving spinal surgery to correct the problem within the next couple of months and the prognosis is excellent.

Take care and stay well,

Best regards,
 
Murray

Note:  If you have not yet seen them, we have set up two pages on the web site that contain over 100 pictures taken at IAL 2004 in Anaheim.  They begin HERE.   Enjoy!


 VoicePoints [ ? 2004 Dan H. Kelly, Ph.D. ]
  
  coordinated by   Dr. Dan Kelly, Retired Associate Professor ( dy_kelly@msn.com )
 
                               Department of Otolaryngology, Head & Neck Surgery
                                7700 University Court, Suite 3900, West Chester, OH  45069

THE MASTER CLINICIAN                                       ? August 2004 Dan H. Kelly, Ph.D.  Copyright
By Dan H. Kelly, Ph.D.

     ?Dan, you must have a Shangri-La? - words spoken to me by my dear professor and mentor Charles Van Riper nearly 40 years ago. Van?s Shangri-La was the Upper Peninsula of Michigan and mine a 100 plus acre farm in southern Ohio just a few miles from where I grew up. As I move into that wonderful time of life when I can devote most of my waking hours to farming cows with my ?Aussies? Tugger and Sunshine Annie, I can look back on almost forty years of clinical practice and offer some opinion on what unique qualities go into making a ?master clinician?.

     As a profession, Speech/Language Pathology evolved borrowing its initial knowledge base of information from other disciplines including medicine, psychology, education, and general speech. Early practitioners had only a sparse scattering of literature regarding the principles and methods of speech correction from which to draw. Now as in the past, most of the treatment strategies utilized currently have their foundations in psychology of behavior change. In the ensuing years, the literature base within the profession of speech/language pathology has flourished as investigators have carried out controlled study of the elements of normal or malfunctioning communication systems. In spite of the proliferation of new knowledge within the profession, clinicians continue to pursue eclectic approaches to successful treatment of patients. All clinicians should be prepared, at their respective levels, to be consumers of research findings, seeking the skills, tactics, and techniques allowing them to become better clinicians.

     Professional accolade and accomplishment does not assure one a master clinician rank, nor does sheer quantity of experience always translate to the status of master clinician. There is a clear difference in a clinician who has 20 years of experience and one who has one year of experience repeated 20 times. While a knowledge base of theory, teaching, technique, investigation and research play an important role in becoming an effective clinician, accomplishments in these areas do not make one a master clinician.

     Versatility has always been a core component of the master clinician. Master clinicians are problem solvers. They thrive on encountering and solving important clinical problems, particularly challenging ones. Master clinicians are well versed in the basics of normal anatomy, physiology, kinesiology, physics of sound, acoustics, perception, phonetics, language, and behavioral modification. They have an abundantly clear understanding of the bases of the normal speech/language process; they have a propensity to harvest information from a variety of sources and disciplines, adapt the principles or methods, and incorporate them into their plan of care for the successful treatment of patients. They are neither ritualistic nor redundant in their approach to problem solving. Master clinicians are tenacious in their pursuit of treatment techniques and tactics, which will facilitate their treatment success. Also, they have a creative flair in making patients feel comfortable and willing to participate openly in changing behavior. They incorporate the art, science, and practice of speech/language pathology into therapeutic change and make clinical decisions based on sound theoretical, practical, and empirical evidence. They practice effectively, safely, and ethically and are dedicated to the clinical care of patients.

     Master clinicians know their clinical strengths and weaknesses. They understand their personal assets and liabilities, and work to increase the strengths and improve those areas where they are lacking. They are intuitive observers of behavior and have superb listening skills. They recognize the importance of hearing what the patient has to say. When they listen, they always gain insight into the patient?s needs and know more than when they began. Astute observation and listening skills are critical to enhancing their intuitive manipulation of the assessment, diagnostic, and treatment process. These foundation skills contribute to making them successful.

     Master clinicians have an orderly, although perhaps not always apparent, thinking process in approaching patients. They know how spontaneity and discipline join to become the foundation of good clinical management. They have a chemistry about them which draws trust from the patients they treat. They understand the importance of timing in patient care and behavior change. Master Clinicians are perspicaciously clever at narrowing the field of possible behavioral response and seldom are stymied by unforeseen responses of patients. They are able to do, as well as teach, and can describe complex clinical phenomena in clear and comprehensive language to patient and students alike. Finally, the quintessential master clinician is successful and gets results, and we see those successes in the patients they treat (Proper, L., personal communication).

     Master clinician status is a worthy goal for which to strive or achieve for any clinician. I have had the privilege of knowing, observing and being taught by a number of ?master clinicians?. I always came away knowing I had just witnessed the magic of dynamic interaction.  I only wish it were more often. From my perspective, status of master clinician is achieved only when clinical performance is confirmed by patients, peers and self.

Based upon an original article by the author.
Kelly, D.H., "Some thoughts on what is a "master clinician".
Curr Opin Otolaryngol Head Neck Surg. 2003 Jun;11(3):143.


   WebWhispers' Comments
                                                                                  
Contributions from Members
 

IMPRESSIONS FROM IAL 2004 IN ANAHEIM, CA

IAL in Anaheim
Paul & Mary Ann Winkle
Oak Forest, Illinois

We just wanted to say what a wonderful time we had in Anaheim.  We are both so glad we went; we learned so much about laryngectomees, and met the most wonderful people from all over the world.  It was so good to put faces with the names we've seen on the computer on the WebWhispers site.  We also want to commend the board on doing such a beautiful job with the hotel, the banquet, the seminars ... everything was right on the money.  The hotel was top notch; the food was outstanding, and the interaction with the other larys and their spouses was something we will never forget.

The vendors couldn't have been nicer, and we got to see all the new products and things related to laryngectomees ... things we didn't even know about.  They all took a lot of time with us, we never felt rushed.

We made a lot of new friends that we plan on staying in touch with.  We can't wait for Boston next year!!!  WOW, what a great experience.  Thank you so much.

Great Help from a Cheering Squad:  Report on the IAL Voice Institute
Jane Varner
Little Rock, Arkansas

            I had the good fortune to attend the Voice Institute in Anaheim and learned so much that I highly recommend it to others, especially laryngectomees who attend for the first time because they may apply for the Batten Scholarship, which is $580. (This did not cover all the costs in California, of course, but we did get some freebies, which I'll explain later.)

            First, let me tell what the sessions meant to me in terms of my own voice.  I have a TEP prosthesis and would like to learn esophageal speech, but was trying to put the cart before the horse, so to speak.  My voice sounded watery, so we decided to work on that first.  I was assigned a Ph.D., two graduate students in training, and an experienced lary to my team.  During two sessions a day, Denise and Jamie would come work with me in my room, while the two guys would stop by for encouragement or instruction.  At other times, we attended interesting lectures.

            Since I am going hands-free soon, I discovered a method of gently moving an index finger about 3/4 of an inch above my stoma while talking, which got rid of the watery sound.  However, the graduate students figured out another solution that we all laughed about.  When I tilt my head slightly to the right, my voice doesn't sound watery at all.  This is a perfect solution for me when I'm on the telephone. 

            Once we thought about the telephone, we had the idea that I should call some people and ask questions.  I'm not shy at all because I'm a former reporter, so I called 12 places, mainly restaurants, and I talked to many Hispanics and Asians.  This was a wonderful exercise.  I asked about hours, if reservations were needed, and so forth.

            I had to repeat myself in two or three instances, but found out halfway through this exercise that slowing down would help.  Since we were three women, we decided I should call hair salons and tanning places for prices, hours, etc., just for fun.

            The graduate students also helped teach me how to speak loudly and softly, although they wouldn't allow me to whisper. 

            The other guy in my group spoke with a Servox.  At our closing session, he demonstrated that he was a natural at esophageal speech.  All our teachers were most impressed with our progress.  I plan to work on esophageal speech with my own SLP here in Little Rock.  She was jealous she couldn't attend this year's events because she has done so in the past.

            Besides some hard work, I made many friends, and the fellowship of other larys is great.  Sometimes I would meet someone a second time out by the pool, on the elevator, in the restaurant, or at a banquet.

            Many of our medical suppliers were represented and provided us with free food and cocktails.  California was beautiful this time of year, so parties were held outdoors.

            The experience was truly magical for my voice, my self-esteem, and just for a break from the ordinary. 

Weather too Cool??
Michael Csapo
Escondido, California

The bad news is that the IAL meeting was held just a week to soon. It appears that the weather which everybody had been hoping for out here in California has now arrived. It was in the low 90's yesterday and expected to reach the mid 90's today! Oh well!

Sorry to hear that Dr. Stone will no longer be Director of the Voice Institute, he was very helpful to me while I was attending.

First IAL, Not The Last
Roger Silberman,
San Francisco, CA 

This was my first international convention. I did go to the CAL convention in Reno last year. I found the convention in Anaheim very informative from the different speakers, and I gained a lot of info from the medical suppliers about different products. The WebWhispers dinner was very well done, and so was the dinner the last night. The last night had a special guest and it was Nicole Robinson of the "West Wing", and it made my night as I got to dance with her. I used my electrolarynx a lot, until I was asked why I did not talk as I did have a prosthesis. I did not have a good answer, other than I was used to using the electrolarynx. After some persuasion from the gentlemen from Florida, I used my voice for the rest of the convention. God willing I will be in Boston next year for another smashing IAL convention.     MANY THANKS to all the volunteers that made this convention possible.

Coming to Terms with being a Lary
Frank Owens
Bensalem, PA

I learned a couple of things there. First my quick story.  July 14 is my lary anniversary. Seven years ago I had a list of things I was going to do but cancer had decided to cancel those events for me, at least all those which centered around Anaheim, CA. The neat part is I finally made up for that and did them after the convention, except for trying to surf. I feel like I am picking up where life left off.

Second, the hard thing I had to come to terms with is being a lary. I thought there would be many limits. After meeting with these larys I found out different. I found myself encouraged and not limited as I as I had thought. Just use common sense during times of insanity and it will be OK.

At the Voice Institute as an LT, I felt welcome and as if belonged there all the time. Instructors, mentors and all made me feel equally as important.  The program was great and I learned a lot of what is going on with me and in me.

Since it was my first time coming I was overwhelmed by what was there. That makes it hard to pinpoint down to one thing.

Thoughts on the IAL 2004
Philip Clemmons
Cullman, Alabama

Pat Sanders asked those of us attending the IAL Convention to jot down some of our memories to share with those unable to attend. While I was in Anaheim I kept thinking of that. Before I get into the meat of my memories I must share two things with you.

First, I remember when I was a boy and someone asked my dad, Lowell, why he did favors for people who had no way of ever returning the favor. My dad told the person that his father was a Baptist preacher and that they were very poor, especially during the depression. My dad said he never could have made it through college and medical school without a lot of help. He said that one of the people who helped him was a doctor in the town they lived in. He said he had once asked the doctor how he would ever be able to pay him back for all that he had done. The doctor told him that he couldn?t. It would not be physically possible for Lowell to ever return the favors to him. However, after he had made it through medical school, and had become a doctor, he would have plenty of opportunities to help other people. Most of those he helped would have no way to pay him back so it would be pay back for those people who had helped him many years before.

Now, on to my memories. I will have to give you a little history first. I attended the IAL Convention in Vancouver. It was my first time to really participate in very many things. I had attended Nashville, for the Voice Institute, but I did not a lot about what was going on in the Annual Meeting. My primary focus in Nashville was to see if I could learn a little about esophageal speech. I did, and it was a success. However, Vancouver was the first one where I really participated in everything. One of the items on the program in Vancouver was a swimming demonstration. Prior to my laryngectomy I had enjoyed the water. I liked to swim, I liked to dive, none of which I was very good at; but I enjoyed it. Anyhow, I went to the swimming demonstration in Vancouver. I watched Elizabeth Finchem, Pat Sanders, Ian Milne, and several others swimming. I was just blown away. I had no bathing suit there, so I took off my shirt and shoes, rolled up my pant legs, took my billfold out, and jumped in! It was almost an epiphany. The next year, in Atlanta, I was one of the demonstrators. Now, I don?t swim a lot, but I do when I want to.

This year, there was no swimming demonstration listed on the program. Two or three of us who swim talked about when we would do it, or who would do it, and when would it be. At the end of the delegates? meeting there had still been no mention of the swimming demonstration, so, being the bashful person I am, I jumped up and asked Bob Mehrman (IAL President) when the swimming demonstration was? He asked me when did I want it? I knew my schedule, but not necessarily anyone else?s, so I said that we would do it 12:30 that afternoon. The weather is a little cooler in Anaheim than it is in Alabama, and I?ve gotten older and don?t enjoy cold-water swimming like I once did (which I never did), so I picked a time for maximum warmth that fit my schedule. This may have been the biggest mistake I have made in a log time. My dear friend Pat Sanders, who some day will get over being mad at me, had a session scheduled on  Newsletters for 12:15 to 1:30. She was not happy.  One of her nicer comments was that she hoped the attendees knew that not everyone in Alabama was as dumb as I was.

Anyhow, back to the IAL and the swimming. After I announced the time, I talked to several about the swimming. I told them to wear their swim suits, and be there at 12:30. When I got to the pool Ian Milne was already there and said that the water was great! Shortly after I got in, Elizabeth Finchem arrived and joined us in the water. By now there were two men there watching to see how we were swimming. One of them, Robert Robinson, from Montreal, and told me about being a long distance swimmer prior to his operation, and how much he missed the swimming. He was soon in the pool! Paul Skiora, from Tucson had told me how much he enjoyed swimming in Tucson, and down in Mexico. He did almost the same thing I did in Vancouver, shed his shirt and shoes, and was in the water.

We swam for a while, with Paul and Robert getting more and more confident. We had another swim session on Saturday, before the fun show. In the second swim session Robert was able to go across and back on one breath. Both first-time swimmers were ecstatic at the fact they were back in the water. I?m pretty good with words, but I don?t have the words to describe the looks on their faces. It was part glee, part elation, part satisfaction, and pure joy.

I know that helping someone get back in the water is not the same as teaching them how to do esophageal speech, or how to use a pneumatic device, but it?s something that was done for me, and now I?ve done it for someone else. This is what the IAL is all about, passing down, from one to another, the shared knowledge of how we do those things we?re not supposed to be able to do.

Now for some random thoughts on the 2004 IAL Convention or what did I learn while I was having so much fun. These are in no particular order, duh ? they?re random!

I learned a new trick on maintaining a seal for my hands-free device, actually several. First, make sure the skin around the stoma is completely dry before applying any glue. After it is dry do not stick your fingers on it to test it. Your finger tips have natural oils that interfere with the glue process. Second, let the glue dry for at least five minutes before placing the hands-free valve housing. The drier the glue is, the better it works. I had been letting the glue dry for four minutes, after I heard Eric Blom?s lecture I went to five minutes. I can tell the difference. Third, I was talking with Richard Crum about wearing a tie. He wears one all the time, I usually wear one when I?m working. I told him I did not button my top button, or pull the tie knot all the way up. Richard said he used his collar to keep the valve and valve housing from bulging out, and to help maintain the seal. I tried it ? it works.

I met a man who has an UltraVoice and is a really good speaker. He is the first laryngectomee I have met in 14 years who is a good UltraVoice speaker. UltraVoice gets a lot of bad press, we need to be aware of the good as well as the bad.

There was a pneumatic device user there, Sid Young. He has a great voice, and is very adept with the device. It is not hands-free, however it produces the best voice of any of the non-TEP types. I had seen an excellent user several years ago in Seoul, Korea, Sid is the second excellent user. I have wondered for some time why the pneumatic device is not more popular in North America than it is. I think we may be overlooking a very viable alternate means of speech. If I did not have a TEP I would probably use esophageal speech and/or a pneumatic device.

There is no common denominator among laryngectomees. Certainly, most of us, or least a bunch of us, have a laryngectomee as a result of smoking. However, it is not universal. At least one individual there did not have cancer, hers is a result of an accident. A number of others have had non-smoking related cancer. There are old and young; white and black, and all the shades in between; rich and poor; male and female; folks in great health other than being a neckbreather and those who have all kinds of ailments; Democrats, Republicans, and those with no clue; in short ? a microcosm of our pluralistic society.

I spent time with some old friends, made new close friends, and missed several who were not there. One of my friends, Mark Crowe, is tragically not with us anymore. I missed his ribald jokes and the Masonic stories we would have shared. A couple of friends were not there who are going through new treatments. I sure hope they make Boston next year.

I enjoy WebWhispers, it serves a needed purpose. It is no substitute for face to face interaction. I really enjoy going to the IAL Convention, it is one of the few things I do that has no connection with work. I do it for pure pleasure. It makes me a better speaker; it makes me a better person.

I am looking forward to seeing old friends in Boston next year, and making new ones.


                          Dutch's Bits, Buts, & Bytes
 
(1) The "Scam Scares" Are Often Over The Top.

In mid-July, I received the following Email message from an anonymous sender (he chose not to identify who he was):

QUOTE:  "In the process of researching a laryngectomy (I have just had one along with a full glossectomy) I accessed your site.  I have since been targeted by Email from a scam artist in Nigeria who claims he received my details from the Web Whispers site.  I attended my first meeting today of a local laryngectomy club and warned them of the dangers of giving their details out with your website in particular.  I don't know if this information is of any use but I thought it best to inform you." END QUOTE

I politely answered this Email as follows, resisting the urge to be more "DIRECT":

"To whom it may concern (since you did not sign the above) ...
 
Thanks for the heads up ... however, since you are NOT a WebWhispers member, neither your Email address nor any of your other personal data are located/listed on the WebWhispers web site.  Your Nigerian scammer is BS'ing you ... which is, of course, what they LIVE FOR.  What he CLAIMS is simply technically impossible.  And you can QUOTE ME to your local club when you apologize for giving them false information, based on an assertion from a clever scammer.  He obviously obtained your Email address from somewhere, but it was NOT from you simply accessing the WebWhispers web site.  I would politely suggest that, in the future, you fully research the basis for your accusations before you unfairly make and spread them.  Thanks for the consideration."

Our anonymous Emailer then replied as follows:

QUOTE: "Apologies for your interpretation of any assertion and I will make the same known to the club at the next meeting.  I also never intended to cause you offence, but to make you aware of what was happening.  I appreciate that these scammers are technically very clever and as I am not, the link to your site concerned me, not for myself but for others that may be taken in by the scam.  Once again apologies for any offence.  END QUOTE"

Pat Sanders, our VP for Web Information, on behalf of the Executive Committee, then wrote him back with information worth sharing with all of you:

"Thank you for replying to Dutch's email and for the promise to straighten out any misconception about our site.

First, as you might know from viewing our site, we are all volunteers and work hard to do the best job we can of educating and rehabilitating laryngectomees and we offer all of our services free.  We have our membership lists in a secured section of the site along with our list mail since spammers do love to find open email addresses on web sites.  It has worked well for us although there is always the chance that a spammer can figure out our passwords (and we change them occasionally for that reason), that would still affect only our membership still would not affect visitors to our site.

When I received a copy of your first message to Dutch, my feeling was that someone who needs us badly in order to find others in the same situation or having had the same experiences as a lary, would hear what you said and help spread the word that our site was a dangerous place to visit.  This would defeat our purpose and could prevent someone from reaching out for help.  There is no way that anyone can read your email address from your visiting a site and this is the first report of a happening of this nature.

I understand that you believed you were helping fellow group members and particularly after your second message that you are offering to rectify any misunderstanding.  We have kept our reputation so clean and honest that it is a real shock when something does come along that indicates a problem.

Now, to trying to figure what happened.  If you still have the Nigerian Spam, could you open it so the heading is complete and then forward the entire message to us.  I think perhaps a complaint to the FTC is in order.  I have just talked with a computer expert and have been told that there is technologically no way that our web site can know who comes in as a visitor to the site.  HOWEVER, he suggested a solution that should be of help to you.  He says you probably have, without your knowledge, in your own computer some Spyware implanted that watches where you go and sends that information on to the spammers who put the Spyware out on the net.  No telling where you picked it up.  He said to warn you that they have some of these programs that memorize your keystrokes so don't go to your bank on line.  If you do not have Norton Anti-Virus, I would suggest you get it.  If you use IE as your browser, be sure you have all of the latest updates because IE is the main way the Spyware gets in.  They now have patches for the latest infection but I personally started using another browser for now that is not susceptible to this.

Back to your health situation, we do have a lot of information and links that could be of help to you.  I would hope you will take advantage of this. It is what we are here for."


THE  BOTTOM LINE:  Many "myths" abound about scammers/spammers and what they can and will do.  However, one thing is FOR SURE.  Scammers and Spammers CANNOT obtain access to your Email address simply because you merely access and read pages from the WebWhispers web site.  Asserting thus is simply another Urban Legend ... not based upon the FACTS about the cyberspace environment.  This is, however, a good lesson for us and should encourage you ALL to perhaps invest in some computer anti-spyware software, such as "Spybot Search and Destroy" (See my review of this software in the May 2004 edition of Whispers on the Web).

(2)  Officers' Semiannual Report to the Membership

For those who missed it, please note that your Officers' Semiannual Report to the Membership for the period 1 January - 30 June 2004 is available for your reading and review on our web site in the Reports Section.  You may access it directly from HERE.  This will give you a good idea of what your club has been busy doing in the first half of 2004.  Enjoy the read!

(3)  IAL 2005 Scheduled for Boston, MA

The 2005 IAL Annual Meeting and Voice Institute will be held in late-August /early September in Boston, MA.  You can take a sneak peek at the IAL 2005 Home Page and at the hosting hotel facilities (The Boston Park Plaza) beginning HERE.  You might "bookmark" the IAL 2005 Home Page for future reference as plans evolve over the coming months.


   Lary Laffers   

Our Most Unusual Stoma Cover Request
from Dorothy Lennox, Luminaud Inc.

At a Speech Pathologists' meeting, a lady came to our vendor's table and inquired about what we could offer in the way of a sturdy stoma cover that would do a good job of filtering and would not pull back into a very large stoma.  We asked if she'd considered an HME, but she said that wasn't big enough.

She measured with her fingers.  Apparently the stoma in question was at least two inches in diameter!!   When she saw our eyes widening and eyebrows going up, she told us that it was not for a human patient, but for her donkey!!!!

It seems that this is a very famous donkey in his area of the state.  He pulls carts in parades.  But he acquired a growth that interfered with his breathing and had to have a tracheotomy.   When he has no jobs lined up and spends his time out in the pasture, she has to clean his stoma only twice a week - but when he's working a parade, he breathes in all kinds of dust and nasty stuff and she has to clean his stoma several times a day.  Even though he is very docile and co-operative for cleaning, a good stoma cover would make life more comfortable for him and easier for her.  He still has his larynx and can bray, she assured us, VERY loudly.

We had a couple of suggestions for her to try and we hope they are helping.  This is one very lucky donkey - to be owned and loved by a Speech Pathologist!!!
 

   ListServ "Flame Warriors"   


                                                                               
Terms of Importance
flame

1. n.   A hostile, often unprovoked, message directed at a participant of an internet discussion forum.  The content of the message typically disparages the intelligence, sanity, behavior,  knowledge, character, or ancestry of the recipient.
2. v.   The act of sending a hostile message on the internet.

flame warrior
1. n.   One who actively flames, or willingly participates in a flame war ... (Another Example Below) ...

Xenophobe

Xenophobe is usually a long-term discussion forum participant
who thinks of the forum as his own private compound. 
Xenophobe regards Newbies to his forum as mentally
deficient and perhaps even having criminal tendencies, and
they are invariably approached with suspicion and
condescension.  If a Newbie has the temerity to make critical
observations about the forum's social dynamics, or questions
prevailing opinion, Xenophobe will attempt to silence or drive
out the newcomer.

Above courtesy of Mike Reed
See more of his work at: http://www.winternet.com/~mikelr/flame1.html 
 
 

   Welcome To Our New Members:

I would like to welcome all new laryngectomees, caregivers and professionals to WebWhispers! There is much information to be gained from the site and from suggestions submitted by our members on the Email lists.  If you have any questions or constructive criticism please contact Pat or Dutch at Editor@WebWhispers.org.

Take care and stay well!
Murray Allan, WW President

     We welcome the 27 new members who joined us during July 2004:

Rick Anderson - Cord Paralysis
Sugarloaf, CA
Mary Ann Arnolde
Papillion, NE
Guy Bennett - Vendor
Spokane, WA
Todd Bohnenkamp - SLP
Terre Haute, IN
Launa Browning
Chattanooga, TN
Rod Michael Chester
Kansas City, MO
Roy Clowes
Golborne, Warrington, Cheshire, UK
Charles Cobleigh - Vendor
Boise, ID
Bill & Nancy Cornman
Arvada, CO
Bud & Mary Gene Dailey
Chesterfield, MO
Roberto De Mitri - Caregiver
New York, NY
Nick Fuhs
Wilmington, DE
Glenda Fussell
Panama City, FL
Jennifer Hagenmaier - Caregiver
Indianapolis, IN
Cheria Hay - SLP
Prescott, AZ
Nancy Johnson - Caregiver
Surprise, AZ
Yolanda Kinsella
Brooklyn, NY
Corrine Kole - SLP
Prescott, AZ
Mary Meyers
Kansas City, MO
Tomara Mortensen
Las Vegas, NV
Victor Orenchuck
150 Mile House, BC,
Canada
Adrian Radford
London, UK
Jack Ramos
Hudson, FL
Louis Ridings
Yakima, WA
Paul Sikora
Tucson, AZ
Bruce Turner
Brisbane, Australia
Vince Zappia
Las Vegas, NV



 
WebWhispers is an Internet-based laryngectomee support group.
  It is a member of the International Association of Laryngectomees.        
  The current officers are:
  Murray Allan..............................President
  Pat Sanders............V.P.-Web Information
  Terry Duga.........V.P.-Finance and Admin.
  Libby Fitzgerald.....V.P.-Member Services
  Dutch Helms...........................Webmaster
      

  WebWhispers welcomes all those diagnosed with cancer of the
  larynx or who have lost their voices for other reasons, their
  caregivers, friends and medical personnel.  For complete information
  on membership or for questions about this publication, contact
  Dutch Helms at: webmaster@webwhispers.org   

 

Disclaimer:
The information offered via the WebWhispers Nu-Voice Club and in
http://www.webwhispers.org is not intended as a substitute for professional
medical help or advice but is to be used only as an aid in
  understanding current medical knowledge.  A physician should always be   
consulted for any health problem or medical condition.



As a charitable organization, as described in IRS § 501(c)(3), the WebWhispers Nu-Voice Club
is eligible to receive tax-deductible contributions in accordance with IRS § 170.



  ? 2004 WebWhispers
Reprinting/Copying Instructions
can be found on our
WotW/Journal Page.