January 2011

 


 

 

Name Of Column Author Title Article Type
News Views Pat Sanders Experience Or Witness News & Events
VoicePoints Jodi Knott, M.S.,CCC/SLP Frightful Weather Outside Education-Med
Between Friends Donna McGary Cleaning Out The Clutter Commentary
Travel With Larys Jack Henslee It's A Long Road To Hollywood Travel
The Speechless Poet Len A. Hynds My Other Self Prose & Poetry
Words From The Webmaster Len Librizzi My First Year As A Lary Pt 3 Experience
P.S. Tammy Wigginton Out Of The Shadow & Into The Spotlight News & Events
WOTW Editor Scotty Chandler A Recent Visit To “ER”! Experience
New Members Listing Welcome News & Events

 

 

 

 

Experience or Witness

 

Experience - Noun - Knowledge or practical wisdom gained from what one has observed, encountered, or undergone.

Witness - Noun - An individual who, being present, personally sees or perceives a thing; a beholder, spectator, or eyewitness.

You may read many articles in this newsletter marked as "experience". Some could be called "witness". Our members learn by being there or being near and we are glad they write about it. The patients who have the fear of a diagnosis and finally receives the one they do not want, will have experiences that will change the pattern of their lives and the lives of others around them. The caregivers participate in a different way. Want to or not, we learn!

We learn from experiences that we are involved in. I was told about radiation and what to expect. It helped to have been told some of what they told me. I had my first round, lasting 6 and a half weeks, for post surgery breast cancer, and the first two thirds of that time was ok. But gradually what felt like a hot rock in my breast became what felt like a reddish glowing piece of charcoal. I survived, healed and seven months after that first session ended, I learned that I could do it again... when vocal cord cancer was found and I went for another round of that same duration. It was the same and it was different.

We learn what we can take without complaining. We also learn by being a witness to what others are doing...or having done to them. I sat with several friends while they had chemo and the tubes, lines, needles and paraphernalia in the cubicles became part of the scenery...but I never knew what it felt like. I witnessed, not experienced. I learned in a different way.

Caregivers may be witnesses to the discovery or treatment of cancer and, at the same time, have their own experience of suffering a disruption and change in their own lives, over which, they have no control. Watching someone you love go through this is experiencing pain of another kind.

I learned that the more I know about what might happen and how it feels and what may help me through it, the better off I am. You may feel differently about this but, to me, this is one of the most important services of WebWhispers. To have information shared, if wanted, from those who have witnessed and those who experienced. We have this going on in the email list, and the forum, in addition to having a Library with categories to help answer your questions and this newsletter to share some stories.

 

Enjoy,
Pat W Sanders
WebWhispers President
 

 

 

VoicePoints written by professionals 

Coordinated by Meaghan Kane Benjamin, M.A., CCC-SLP

 

                                         meaghan.benjamin@mac.com  

                 

 


The Weather Outside Is Frightful,

but The Stoma Doesn’t Have To Be!

 

It’s that time of year! For the laryngectomized individual, who now breathes via the stoma rather than the nose, seasonal changes can be particularly difficult.

The change in the weather, cold or warm, can cause changes in the mucus emitted from the stoma. The changes can vary from thicker mucus, thinner mucus, tinted blood (less than a tsp amount) in the mucus, mucus plugs and/or increased crusting of mucus around the stoma. This time of year, when most parts of the United States are getting colder, we turn on our heaters. As a result, the air tends to be drier, thus increasing the need for additional moisture to the lungs.

Following a laryngectomy, there are anatomical changes in the respiratory system.

The airway is surgically separated from the nose and mouth and the permanent airway opening is the stoma. Once breathing through the stoma, the nose is not able to “to do its job” of filtering, moistening and humidifying the air. Therefore, the lungs receive all the dust particles, pollen, etc. in the air. The lungs are not made to accommodate these unfiltered particles, and as a result, make more mucus, to clear the foreign particles. To complicate this process, there is no moisture to assist in clearance.

What can you do to help your patients?

It is of the utmost importance that every laryngectomized individual wear a heat moisture exchange filter (HME.) The filters are available through ATOS Medical, InHealth Technologies and Trachinaze. The filters are coated with Chlorhexidine (anti-bacterial agent,) NaCl calcium chloride salts (helps trap moisture,) activated charcoal (helps absorb volatile fumes,) and are disposable after 24 hours of use. The filter captures the warm, moistened, and humidified air upon exhalation. Upon the laryngectomee’s next inhalation, he/she is receiving his own moistened, humidified, filtered air.

Ackerstaff, Fuller (2003) revealed a decrease in:
coughing, 68%;
sputum production, 73%;
forced expectoration, 60%;
need for stoma cleaning, 52%
after wearing the filter for approximately 3 months. The filter’s advantages also include: decreased viscosity of secretions, decreased risk of mucus plugs and re-instates the normal resistance of breathing for the lungs.

The HME filter can be attached to the laryngectomee via use of an intraluminal device, which includes a Laryngectomy Tube, Barton Mayo Button and/or Lary Button. The filter can also be housed by a Peristomal attachment (adhesive adhered around the stoma.)

Keep in mind a stoma cover, laryngofoam filter, bandana, etc. does not benefit the laryngectomee in the same manner as an HME filter. These types of devices are purely a “COVER.”

The speech pathologist should evaluate the patient to determine which type of attachment and HME is best suited for each patient.

In addition to wearing an HME, it is recommended that the laryngectomee utilize sterile saline for inhalation. This consists of “squirting” 3-5cc of sterile saline into the stoma 3-5 times per day. This will make the patient cough… but it adds extra moisture and assists in keeping the secretions thin!

Additional tips include: using a cool mist humidifier, maintaining your hydration and use of mucolytic medications (i.e. Mucinex.) after checking with your physician.

 

Jodi Knott, M.S., CCC/SLP
Clinical Coordinator of Speech Pathology and Audiology
MD Anderson Cancer Center
 

Reprint, Nov 2009, WotW

 

 

 

 

 

Cleaning out the Clutter

 

Perhaps some of you saw Ben Stein’s commentary on CBS Sunday Morning last week. I am going to shamelessly draw from that for my column this month. I suspect he will not mind. What he said, in a nutshell, was that cleaning out our closets and attics and donating the stuff to Goodwill is all well and good, but the real bugaboo is cleaning out our heads and our hearts, for there lurks the stuff that will really take us down.

I cleaned out my own closet recently and finally admitted to myself that I will never fit into my skinny jeans again. I am allergic to that cute vintage fur jacket and those shoes hurt my feet. All of them off to the consignment shop and hopefully to a new owner who can do them justice. How have the mighty fallen!

As tough as it was to admit that, tougher still was to recognize that there are even worse things in one’s closet than an abiding fondness for rock n’ roll style long past its expiration date. Like long held resentments, guilt and anger. They are way more toxic than an affinity for wild hair and bad boys with guitars.

So, it’s time to let go of that old stuff. I am willing to bet I am not the only 50 something who still harbors a secret grudge against a parent or a sibling…maybe both…for a very real infraction. You know what? Yes, they did it and it was wrong, but you survived anyway and they are family, so get over it. The statute of limitations has run out. Let it go. If you have kids you will probably do something just as bad to them, at some point, and spend the rest of your life regretting it. That combination of resentment and guilt can take up a lot of room in one’s psychic closet, and those two breed faster than shoes in a fashionista’s walk-in.

Which brings me to forgiveness. Forgiveness tends to be thought of as a Christian tenet, but most religions acknowledge its virtue. I am somewhere between an atheist and an agnostic depending on how discouraged I am about the human condition. But I was brought up a Christian and I think forgiveness is a most wonderful idea. I loved Jesus as a little girl and I still think he is a great role model, even if I am skeptical of his divinity.

Forgiveness can be very liberating. You forgive an old friend for that surprisingly insensitive comment made just for laughs and you have your old friend back, a great new story and a weight lifted off your heart. Let it go. That loan not paid back…you would have spent it on shoes that you can’t wear anymore, anyway. Let it go. All those times you were stung, hurt and wounded…let it go.

Harder still is forgiving yourself for all the times you stung, hurt or wounded someone else. In all religions there is no forgiveness without confession or acknowledgment and in some cases retribution or compensation. In other words there is no free ride. You play, you pay. Long after you pay the fine, however, forgiving yourself can be an elusive goal.

“Forgive us our trespasses as we forgive those who trespass against us”. You don’t have to believe in anything other than our shared humanity to embrace that credo. For most of us it is not the one big, bad thing that weighs us down. It is the emotional clutter of all the little hurts and aggravations, those nursed grudges and resentments that keep us from truly enjoying life.
Letting go of those things gives me so much more room in my closet for new things. Good, strong, happy loving things. It has been a difficult year. Let’s start fresh, shall we?

 

 

 

 


 

It's A Long Road To Hollywood

Jack Henslee

 

Many of you are already aware of the "Voices Restored" program I initiated back in 2008 for Costa Rica. This is the third installment of the stories previously submitted to "Whispers On The Web."

In early 2009 NatureMade was running a contest that required the submission of a very short essay describing something you did that helped others. The awards were $1,000 for the top 20 submissions, and then the top 6 from that group would be selected for a documentary. I thought it might be nice if they did a story on Costa Rica's success, hoping to create more awareness about laryngectomees so at the last minute I submitted something.

Well they liked it and sent me a $1,000 and said they would be in contact regarding the final six. After several months and no word they finally said that the contest has been aborted and that was that. My brother had the bright idea that we should do our own documentary and kept after me for months to do so. He thought the story was great (he's a film buff and has written several screen plays) and he argued that it wouldn't cost much (my money of course) because my son in law is a struggling film maker that was unemployed at the time and he had all the equipment. I didn't bite... at least not then.

I returned to Costa Rica last Nov to speak at their second conference for laryngectomees and figured that that would be a great opportunity to shoot the documentary using the conference as a backdrop for the story. We then got to work putting together a budget, a shooting script, applied unsuccessfully for grants, and worked out the logistics and coordination with my Costa Rican friends and Barbara Dabul, the SLP that helped me last time.

The first warning signs came early; needed a new camera, portable hard drives for back up, boom pole, memory cards, cables, spare batteries, translators, and on and on. The first day was on camera interviews with the laryngectomees. Of course all that were expected were not there...specifically the spouses. But we proceeded and recorded some really good interviews, some heart wrenching, some funny, and all were proud of their accomplishments and readily expressed their appreciation. We thought we were off to a great start.

The next 2 days we shot scenes of the conference and did a few more interviews with the support staff and others. Then we were off to the coast for a little fun time and some additional background scenes. The budget was completely blown before we even headed for the coast.

Once we returned home the editing process began on the 40 or so hrs of film we had shot. That required the purchase of some expensive professional editing software, which when once acquired we discovered would not run on our "old computers" without crashing every 10 min or so. So added to the budget were 2 computer systems and other miscellaneous odds and ends that kept adding to the budget with the cost for music licensing being another big item.

Now, after 3 wasted months, we began the editing in earnest. The first problem was that the first day interviews were almost unusable because we failed to keep tract of the changing light as we filmed. (We failed to screen each days shooting to make sure something didn't need to be re-done). Many, many hrs were spent by 3 different people trying to correct it before we got a less than ideal but usable product. The next stop involved the translations from Spanish and the voice overs in English. This actually went better than expected but since we were using a "volunteer" to do this we had to work on his schedule. Finally after another month or two we were ready for the nitty gritty of editing but my "volunteer" editor became "Employed" so that put us on his schedule.

In late April we finally had a 53 minute "First Cut" which was publicly screened at the California Association of Laryngectomees conference in Stockton, CA. We knew there were still big problems but before we proceeded we wanted some feedback...and we got it! There were many comments but the one expressed the most was...Too long!

We then went back to editing mode and cut it to 46 min by eliminating some interviews and shortening others...of course I thought everything was good stuff but we had to "kill some babies". My babies!

Finally, in Aug 2010, after 9 months we had a much improved product that still needed some work, but because of my desire to enter it into some film festivals this year we went with it just making the final deadlines for 2010.

San Francisco said thanks but we had hundreds to select from and you didn't make it. Las Vegas (I really wanted to do that one) never even responded. But then the Costa Rica International Film Festival (based in Atlanta, GA) accepted it for screening in late Nov. Great I thought.... This is going to cost another $2,000 to find out what I already know, "A great story with production problems."

This festival was unique. They were going to do 4 days at one location and then do another 4 days a second location. Approximately 80 films screened in total. But Hurricane Thomas changed all that. Roads were washed out to Manual Antonio (the first site) and over 70 bridges were also washed out. So they cancelled the first 4 days and about 40 films and settled for just the 4 days in Montezuma, CR. I was amazed...we made the cut!

Montezuma is very small but it was fun and I saw some really good films (no way I watched all 40). Voices Restored drew a good Sat night spot at 8:30 and I was joined by 3 friends from Costa Rica. We had a larger than normal turnout (good time slot) and the film was very well received. They asked if I would take questions and I prepared myself for the production problems I was sure they would point out. The first question was not a question.... the man said "I have no questions. I just wanted to thank you for what you are doing, and for reminding me that I also should be doing more to help others." Damn near cried on the spot. The rest of the questions were all laryngectomee related with little or no comment on just the film. My brother had told me all along that it's the story not the production so don't worry.

They didn't announce winners but said they would post them on the website in about 2 weeks. It took 3 weeks but it was well worth the wait. A first place award! Not quite Hollywood but what a great journey!

In order to gain more acceptance at film festivals I have further reduced the playing time to 25 min. You can view that version at www.calvoice.org if interested.

 

Scenes From Montezuma

 

     
 

 

 

 


 

My Other Self

 

I attended a lecture by a consultant ENT surgeon and he said that, in his experience, laryngectomees, once they have come to terms with the loss of their own voice and continue life with a new determination, seem to develop expertise in many other areas, as if Mother Nature was there as a “super nurse” and these special gifts are to compensate for what has befallen them.

I thought about the laryngectomee friends at my Ashford Club, and of one who could make the most intricate wooden articles with his hands, things of beauty, whereas before he was hopeless at even putting up a shelf. Another, an arable farmer who had after the operation turned to dairy farming, and now had a prize herd of Friesians grazing his land; a herd talked about throughout the county. And there are others who seem to excel in what they do.

As far as I was concerned, I had never the remotest idea of writing short stories or poetry, my life being involved in factual things; as a detective dealing with normally the horrible side of people’s lives: murder, manslaughter, larceny, rape.

But as I could no longer express myself with the spoken word, my method of expression became my writing. And I was able ( so I'm told), to put emotion into that written word, and it has been mentioned several times that my work was slowly changing. I queried my tutor as to how this thing had developed, and she spoke exactly as that consultant had done. She also said, " You are no longer the author of these pieces. It is your other self, or alter-ego, that is writing for you. This is Mother Nature’s compensation. "

I therefore had to compose a poem, giving alternate stanzas to myself first, and then my other self answering. To make life difficult, I did it in the Italian Villanelle style, which is in a three line stanza, followed by a five line stanza, followed by a six line stanza, and finally a four line stanza. The rhyme pattern being A-B-A.......A-B-A-B-A .........A-B-A-A-B-A........A-B-A-A

This all coincided with a new university course, on creative writing which had the title, “ To find a voice.” Terribly appropriate !!

My Other Self

"To find a voice the booklet said.
That must be something writers need.
I thought in truth, my voice was dead."


"I'm here, look at my face,
oh why do you ignore me,
I'm talking in your place."


"So might I find one here instead?
I think a miracle I need!
To find a voice, the booklet said.
Should I listen and take heed.
I thought in truth, my voice was dead".


"For gods' sake, please listen,
I am your opposite face.
I sparkle and glisten,
a wonderful mission,
I'm talking in your place".


"Can it come back, once it has sped,
my shackled voice, its spirit freed.
To find a voice the booklet said.
Imprisoned , by the hand be led.
Soaring freedom, with gods speed.
I thought in truth my voice was dead".


"Could envy be the case,
why your eyes are closed to me ?
I'm here, look at my face,
I'm of the human race,
I'm here for all to see,
I'm talking in your place."

"I prayed as carefully I read,
those pages with all anxious speed.
To find a voice the booklet said.
I thought in truth my voice was dead".


"I waste my time in fighting,
it's my hand that does the writing.
I'm here, look at my face.
I'm talking... in your place".
Len A. Hynds
 

 

 

 


 

My First Year as a Laryngectomee - Part Three

 

 

I was pretty good using the Electro-Larynx. Some was luck because I did not have much swelling. Most was practice. I found that the best way to improve my speech was to use the telephone. You could not cheat by using facial expressions or having someone lip-read. To be understood you had to pronounce the consonants. Had to practice Ds and Ts, Cs and Zs – feedback was good on the phone as long as you could take criticism.

The first time I went for a haircut was an experience. Would I be able to breath with the cloth the barber used? What about getting hair into the stoma? Well I went and explained to the barber my concerns. Funniest part was sitting there with holding up the covering cloth with my arms so I could breathe. Unnecessary, as I found out over the next few visits. I must have really been a sight.

Going shopping with my wife, Maryann, was also an adventure. I would keep asking her to ask where things were in the store. Also had her order things at the deli department for me. On day she just refused to do it anymore. She said if I wanted something, I should ask for myself. I was angry because I felt she should help me and do the communicating. Looking back after a few weeks it was the best thing she could have done. I was now more independent.

It was time to go back to work. I was still uncomfortable with the thought. Had many thoughts of not being accepted and worries about being understood. The day came and I went in early to talk with my boss. First thing he did was to drag me around to “show me off” to my coworkers. He had told me they we also uncomfortable and were worried about interaction with me, about hurting my feelings or worse. He introduced me as his new “robot”. Everyone would laugh (including me) and the tensions were gone. They would ask questions about how the electro-larynx worked and learned it was really a simple concept.

I was an electronics engineer and always had a lot of interaction with customers and venders. The first thing they did was to send me to a local two-day seminar (I think they really did not know what they should assign to me). I remember going to the meeting that was in a large conference room at a local hotel. Got my materials and sat down at a table. It was set up as a u-shape of tables with the presenters at the open end. After the presenters introduced themselves, the told us we should all introduce ourselves. My comfort level was shot! As it was getting closer and closer to my turn, I had to make a decision – should I hide under the table, run out of the room or stand up and introduce myself. Well I opted to introduce myself –did not tell them anything about my condition to prepare the audience, but just stood up and used my electro-larynx. During the break I got compliments from the presenters and others in the group on how well I was understood. Relief!!

I attended my first IAL meeting that year in Cincinnati. The format was different then. There was a 5-day Voice Institute followed by a 4-day Annual Meeting. The Voice Institute was intensive. SLPs were paired with laryngectomees for one-on-one training. There were three private meetings daily were you could learn electro-larynx, esophageal speech or work with a TEP. There was always time to meet with the VI instructors with any question I had. I had a important question about taking showers. I was using three different shower guards at the same time and still was having trouble getting water in my stoma. My question to Zilpha Basone was “How can you prevent the water from going into the stoma”. I showed her all the devices I had and waited for her response. She said, “I have never lost a laryngectomee by drowning in the shower”. After that comment, I never used a shower guard again.

You made friends for life at the IAL meetings. There was a sense of camaraderie. Everyone spent time at formal meetings and also spent time at social activities. Questions could be asked in the relaxed settings of the social events.

When I went back to work I had much more confidence in my capabilities. My presentations were getting smoother and I was gaining more confidence. I was always a fidgety speaker. I never knew what to do with my hands. Now I had an elect-larynx to keep my hands busy. I felt at ease. If I needed time to get my thoughts together, I would fake having problems with the electro-larynx to give me the needed time. I also found I kept the audiences’ attention – they were concentrating to understand me and make sure they did not lose any of the words. I also used the electro-larynx to gain an advantage at meetings. Whenever I would raise the electro-larynx to my throat, everyone would stop talking and give their full attention to me. A few times I would play some games. I would start to raise my electro-larynx, everone would stop talking and I would then put it down before I said anything.

I remember one business trip vividly. We all went out to dinner at a fancy restaurant. I was eating to fast and was having some trouble swallowing the food. I grabbed my wine glass to take a drink to force down the food. It didn’t work and I had red wine coming out my nose. I used my napkin to wipe my face. Nobody said a word about it – they just kept talking and eating. I did not even have time to feel embarrassed.

That first year had many trials and tribulations along with many fond memories but I made it through! Even with problems, life goes on and it is good. This January is my twenty-first anniversary of my laryngectomy.

 

Len Librizzi, Webmaster
 

 

 

 

 

Out of the Shadow and Into the Spotlight

 

In 2008, Folz BJ et al. searched the Internet and medical literature databases for celebrities who had suffered from head and neck cancer. The search revealed numerous famous head and neck cancer patients. However, only seven cases were well documented in the medical literature; one emperor, two United States presidents, a legendary composer, a world-renowned medical doctor, an outstanding athlete and an extraordinary entertainer.

In spite of their celebrity status, these head and neck cancer patients did not have a better prognosis compared with ordinary patients of their time. Only two of the group experienced long term survival and only one was cured. None of these influential figures used their influence to fund research or to promote knowledge about their respective diseases.

Recently, Michael Douglas and Roger Ebert have been very forthcoming about their diagnosis and treatment for head and neck cancer. Hopefully, their celebrity status will raise public awareness of signs and symptoms of Head and Neck Cancer. It remains to be seen whether or not they will use their celebrity status to fund research.


Just a few celebrities who have had Head and Neck Cancer:

  • Actor Michael Douglas: base of tongue cancer
  • Film Critic Roger Ebert: salivary gland cancer
  • Rock Guitarist Eddie VanHalen: tongue cancer
  • Actor Jack Klugman: laryngeal cancer
  • Yule Brenner: laryngeal cancer
  • Singer Song Writer John Prine: laryngeal cancer
  • NASCAR Driver Bobby Hamilton: oral cancer
  • Musician/Beetle: George Harrison: laryngeal cancer
  • Singer/Rat Pack Member Sammy Davis Jr.: laryngeal cancer
  • Baseball Legend Babe Ruth: nasopharyngeal cancer
  • Baseball Player Brett Butler: tongue cancer
  • Actor Humphrey Bogart: laryngeal cancer
  • Actress Lana Turner: laryngeal cancer
  • President Ulysses Grant: laryngeal cancer
  • President Grover Cleveland: tongue cancer
  • President George Washington: epiglottic cancer
  • Actor Burl Ives: tongue cancer
  • “Father of psychoanalysis” Sigmund Freud: laryngeal cancer

 

Submitted by Tammy Wigginton
 

 

 

 

 

Emailing to a WW member, not long ago, that getting rid of an EL because you don't think you need it or because you don't use it well, may not be a good idea. It is your voice when your other one is not usable for whatever reason. It can suddenly become your "only" voice.

This reminded me of Scotty Chandler and his experience that he described in HeadLines in 1999.

 

A Recent Visit To “ER”! By Scotty Chandler

 

First thanks to all of you for your thoughts and prayers during my recent hospital visit. Any hospital emergency visit is scary, at best. In my case the heart attack or myocardial infarction (two of them and three operations in 2 days) was caused by a clogged artery and a blockage causing damage to the muscle (heart) itself because it can’t get oxygen. This artery has to be opened “immediately” or else damage gets worse or death occurs. There is a ‘clot buster’ injection that immediately starts a super-thinning of the blood which can lead to a profuse amount of bleeding from the stoma or lungs. In my case, I was already coughing slight blood specks , which is normal for me at this time of year. So when the shot came, so did the gushing from the stoma. It was up to me to cough the blood out or have someone who could suction it and I’ll bet not 1 in a 100 in ER would know what to do even when trained properly in their schooling. I more or less had to tell the excellent ER doctor, “You take care of the heart. I’ll take care of the breathing and bleeding and let you know if I need help.” The blood begins to gel much as mucous does as you breathe and air hits it. You can’t ‘blow’ it out thus you need to irrigate (dilute it with water) to thin and cough it out. I had to make it clear when the blood started coming up that I had not taken medications for pain or anything that might be mind or muscle altering. I could take care of the blood and be able to communicate with the eight or so nurses by using my Servox. Scary as hell even in an ER with a laryngectomee poster that I had posted there a year ago.

During this time in the ER and during the bleeding for about a two and a half day period, the Servox was my “Best Buddy”. When the blood hits the air, it gels and starts to solidify over the hole in the TEP prosthesis thus closing off any means of communicating other than hand signals. Believe me, trying to write notes as an alternative speech when you’re weak or scared is not too good . Waving your arms in monkey motions are often misread. To those of you who think an electro-larynx is unnecessary since you speak clearly with your TEP or using ES, you had better think again.

I am three and a half years post-op and speak very well with either TEP or EL and this is the first real emergency where I’ve HAD TO HAVE alternative speech. The Orange Card from ACS and the Emergency Card from Lauder showing Neckbreather and the placement of the TEP, allowed me to explain “how” and “what” quicker and more clearly. The Servox helped me to tell them what I needed for my part of the job. This helped to prevent drowning in my own blood or other serious problems if the prosthesis were removed.

I’ve heard people say it was trouble to keep up with their Servox. Trouble to keep up with My Buddy? I don’t think so!


I went to see Scotty in the hospital after his surgery and he was using his Servox because, temporarily, they didn't want him to strain by occluding and forcing air through the prosthesis. He was back to using TEP before he was out of the hospital.

(Pat Sanders)
 

 

 

Welcome To Our New Members:

 

I would like to extend a "Warm Welcome" to our most recently accepted laryngectomees, caregivers, vendors, and professionals who have joined our WebWhispers community within this past month. There is a great wealth of knowledge and information to be accessed and obtained from our website, email lists, and newsletters. If ever there should be questions, concerns or suggestions, please feel free to submit them to us from the "Contacts" page of our website.

 

Thanks and best wishes to all,

 

Michael Csapo

VP Internet Activities

WebWhispers, Inc.

 
 

We welcome the 26 new members who joined us during December 2010:

 

Ben Barbour
New Harmony, UT
Linda Barbour - (Caregiver)
New Harmony, UT
Chuck Boulet
Hopkin, SC
     
Kermit Callands
New Haven, CT
Paul Collins
Paoli, PA
Steve Cooper
Port Huron, MI
     
Sena Gilbert - (SLP)
Fairbanks, AK
Jack Graffham
Wiggins, CO
Brian Innes - (Vendor)
Twinsburg, OH
     
Larry Johnson
Lakeland, FL
Ayacan Kara - (Caregiver)
Turkey
Margaret Lancaster
Meridian, IN
     
Anita Lewis
Florissant, CO
Paul Lile
Santa Cruz, CA
Thomas McNicholas
Boston, MA
     
Debbie Millsap - (Caregiver)
Oscoda, MI
Terry Murray - (Caregiver)
New York, NY
Timothy Paden
Franklin, PA
     
Santo Saya
Syracuse, NY
Paul Schaffran
Welches, OR
Lucille Sgobassi
Jackson, CA
     
John Stevens
Perrin, TX
Vicki Tetens
Arlington, TX
Karen Tompson
Burton on Trent, UK
     
Curtis Tucker
Bangor, PA
Heather Tucker - (Caregiver)
Bangor, PA
 

 

 

WebWhispers is an Internet based support group. Please check our home page for information about the WebWhispers group, our email lists, membership, or officers.
For newsletter questions, comments or contributions, please write to editor@webwhispers.org
           Managing Editor - Pat Wertz Sanders
           Editor - Donna McGary
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